Well we now have a little break from all these appointments so its a perfect time to catch you up on what's going on. Friday we went to our first appointment at the neurologist. It was good. We went over with the doc about all of Colby's minor seizures that we logged, talked about his progress and asked any questions we had. He said that Colby is doing really well. They checked out his vision and he seemed to do well with that. The test just involved the neurologist moving some objects all around Colby's head and watching to see if Colby was moving his eyes to see them or not. We also were able to see Colby's MRI. First they showed us his original MRI from right after the accident. Just a ton of different images of the brain, I could barely tell what was going on, but they did come to an image that had some bright white spots near the back of the brain. Those bright spots represented the damage done to Colby's brain. Then we saw the second MRI taken from to Thursday's ago. When we got to the same image in the 2nd MRI that damage had dulled on the MRI, meaning that his brain is starting to heal. It was great to see. He still has a way to go but it was very promising. We also have begun to take Colby off of his Phenobarbital. It'll be a month long process where we ween him off dropping it down a ml per week, until he's off of it completely. He will continue to take his Keppra for up to a year, but we are very happy to get him off the Phenobarb as it tastes very nasty and Colby hates it, he has become a master at coming up with ways to push it out of his mouth. We will go back to the neurologist in a few months for another follow-up and no more MRIs in the near future as long as Colby continues to progress. So all in all a good appointment, progress is being made and we are so happy and thankful that Colby continues to improve everyday and fights for what we hope to be a normal development.
From the neurologist we moved onto the Physical Medicine and Rehabilitation doc earlier today. It was a much quicker appointment then the neurologist. The doc just checked over Colby, looking at his muscle tone and checking his joints. She did notice that his left ankle was much more loose than his right. His left leg is where he had a number of his minor seizures. So we will be keeping an eye on that over the next few months and it may result in Colby having to wear some sort of brace on his leg as he develops. We also continue to watch this weird arching of his back that Colby does. He is constantly doing it and no one is sure if its just him trying to get another view or his way of moving around right now before he crawls. Everyone is kind of perplexed about this specific thing, we'll all keep watching to see if it goes away. We will also probably be meeting with a speech therapist to help with Colby's eating. We aren't there yet but if he doesn't start taking solids within the next 3 weeks we're going to get some help. Once we get the eating thing down hopefully sleeping through the night will fall back into place. We will also be meeting with an opthamologist to make sure Colby's vision is on track. The damage done to his brain was in the area that affects vision so its something we will constantly be watching. But all in all another good appointment, the doc said this stuff is all minor right now and we'll be keeping a close eye on the Big Cheese!
Blog to ya later!
Scott
