Saturday, April 18, 2009

A picture is worth a thousand words! The Birth

The following pics are not in order as I can't figure out how to scoot them around but you'll get the picture, no pun intended! These photos are from the birth and what went on directly after at Providence. More to come!
All this for one little guy?!?

Mom and Dad getting to touch the baby.


All hooked up.

Little Peanut's/"NotYet"'s first official glamour shot, sans 18million tubes.

On the way to the OR!

Update 4-18-Noon

Hi All,
Sorry for the long delay in posts, but everything is going really well. First of all the baby's name will be decided very soon, so hang in there with us on that front. Little Peanut as he is now reffered to by a couple of nurses, is doing great. He's now taking in breastmilk via a tube that goes through his nose down into his stomach. He seems to like the good stuff. They had to supplement him with some formula and he threw that up, so he definitely wants the good stuff. He takes it right down. His stats are right where they want them, he looks good and even started opening his eyes yesterday and looking around. Jessica got released yesterday and made it up to get her first real good look at the peanut. He opened his eyes right up when she started talking to him and he stared at her for a number of minutes. The sad thing is when he cries you can't hear him due to the tube he is intubated with. So you see this sad face crying away with no sound. Poor guy. Jess is doing well, a bit sore, but well.

I was here for rounds yesterday morning which is an interesting scene. About 10-12 people surround the bed and just get crazy with medical info. There's Attendings, Fellows, Residents, Nutrionists, Respiratory, etc. There's all these numbers and terminology flying around, its impressive.

We spent our first night back at home yesterday since Monday night. It was nice to sleep in your own bed but it was weird to be away from the peanut. Even though he is doing fine you feel like you need to be there. But we have to remember that we need to be good to go for Monday's surgery day and we have to make sure Cooper is doing great too. I finally saw him yesterday morning for the first time which was great, he went to visit Jess in the hospital on Thursday.
Thanks so much to both our families for helping to take care of Coop during these crazy days.
Coop was able to come up and see his little bro for the first time. Coop was able to touch his foot and offered his little bro his "Doggie". Although I think the only reason he did that was to try to steal one of his little bro's new toys sitting at the end of his bed. The hospital occasionally brings little gifts to each child in here. Peanut has received a black lab stuffed dog, an elmo book and the coolest thing, a stuffed Survival Flight helicopter and his own pair of SF wings, brought to him by the SF nurse, Polly. Its too cool!

Jess and I will be trying to get a room at the hospital hotel for Monday and Tuesday, Monday being surgery day. Just so were close by for the big day. We are really confident that everything is going to be just fine and we'll have a healthy peanut in no time. I consider us very lucky as I've met some parents here who are just in so, so much worse situations, its so sad. I'll continue to say this, thanks to all of you for your well wishes, prayers, offerings to help us out, etc, it has truly, truly helped!

Thursday, April 16, 2009

Update 2

Hi all, its about 4:30. Baby had his procedure this morning an Atrial Septostomy and it was successful, he's doing great right now. His oxygen level in his blood is up and he's just "Chillin" that's a clinical term you know! The cardio surgeon said the little man will be "Chillin" for the next couple days. He had a fever after the procedure but they got that taken care of.

We got some great news from our cardio surgeon today. She'll be performing little man's open heart surgery. It will be this Monday around noon. She descibed the whole procedure. She really knows her stuff and is very confident. She said his heart has all the right parts and we just need to switch around a couple pieces. The surgery has a 95% success rate. The one main issue is two tiny arteries need to be moved along with the main big arteries. Those little ones can get kinked. If they do they would have to go back in and touch it up a bit to un kink them. Little man will have a scar on his chest and he'll have a chest tube when he comes out of surgery. They'll keep him in the icu for 5-7 days. He'll be in the hospital for about 2-3 weeks after the surgery. Our cardio surgeon said he will not have to take cardio medicine for the rest of his life. He will have to visit a cardiologist though at least once a year for the rest of his life. I asked if he can still be active and play sports and she said yes he can. Some docs don't want the arterial switch patients to play contact sports (football and hockey) but its a case by case basis. So that was a great thing to hear. I didn't want him to be left out of a major part of a kids life, being active. She said he should live a perfectly healthy life. She told a story of an arterial switch patient who went to one of UofM's congential heart defect patient picnics and went up to a doc who did his surgery 20 yrs ago to say thanks. The kid is now the captain of his football team and is 6-7. So its nice to hear those success stories, it gives much hope. So thank you, thank you, thank you to all of you who have been sending well wishes, praying, reading the blog, its working! He's doing really well and I know were not out of the woods yet but its looking up and I thank you all for thinking of us during this crazy time.

Update

Quick update before I try to catch some zzzz's Its 8:30 am and "NotYet" (that's the baby's name as the staff keeps asking does he have a name and I say "NotYet") is in for his procedure to open up the small hole that every baby has in their heart. It'll take about an hour and a half and if all goes well as it should he'll be stabilized until he has his surgery. I sat with him a good part of the night, he's just laying there with all these tubes and stuff like its no big deal, if he only knew! :) He's in fantastic care here, these people care so much, I'm blown away. Jess is doing well, shes on her way to recovery.

Baby's Here! And He's A Trouble Maker!

Hi All, Well as I start this post its 3:15 am and I am in the waiting room at The University of Michigan-Motts Children Hospital, Pediatric Intensive Care Unit. I'll get to why in a moment. At 5:53 pm Jess delivered via c-section a 7 pound, 7 ounce, bouncing baby boy! When they pulled him out he was crying and everything seemed okay but he was rather pale, so much so I noticed it. Well they cleaned him up and took some photos for us and then the nurses wanted to take him away to the special care unit (spu). The nurses mentioned that they wanted to check out some things as he was quite pale. They had me come with. It was rather weird obviously something was up I just had no idea what. They got him down to the spu and started doing all this stuff. Giving gases to the baby, starting IVs, etc., it was scary. They really weren't telling me too much other than they thought it was a respiratory issue or a cardiac issue. I was initially hoping respiratory. I'm not sure how bad respiratory can get, but a heart issue is scary. So they started running xrays on the little guy and telling me they had a cardiac specialist on the way. At this point, I was starting to freak. Poor Jess doesn't know whats going on, our families don't, no one. So Jess was out of surgery at this point and recovering in 329. I went down to fill her in on the little I did know, pretty much nothing. Well the xray came back clean, meaning no respiratory issues. That's when I was starting to worry. The cardiac specialist showed up and started doing an echocardiogram on our strong little dude. He did it for about 20 minutes, and at one point said to me where do you want to go, UofM or Childrens Hospital. Ahhhh, for what? So he proceded to tell me that our little baby has Transposition, where the aorta and pulmonary arteries are reversed. A good site to check out what this is all about is here: http://www.americanheart.org/presenter.jhtml?identifier=11074

There are some benefits of being a baby, he has a small hole and a small artery which are doing the work of what the aorta and pulmonary arteries should be doing. The first procedure that needed to be done was to make the small hole bigger so it could do the work it was already doing more efficiently. That was where the rushing started and why the cardiac specialist asked UofM or Childrens, we need to know right now. Being the UofM grad in the family, I thought well there's no choice here! Jess and I decided UofM at which then it was decided that our strong little fighter would get a Survival Flight. Yup he got a sweet helicopter ride on the UofM Survival Flight. You should see this team when they role in. They come in like its Top Gun! Chests out, in their maize and blue, air force pilot like, survival suits. The just command so much attention. They had an entourage of the 4 member team, security guards, paramedics etc. They just jump right in and take over. Directing the Providence nursing staff, telling us whats going on, putting up with pictures etc. They got the little guy all set up for flight. When they came in he wasn't doing so well, but when they finished stabilizing him he was in great shape. So good that they figured they might be able to put off doing the procedure of opening the small hole bigger until 7am this morning. So once this procedure is done today, little man will completely stabilize, then comes the big daddy, open heart surgery to repair the transposed arteries. That will occur within the next ten days. They will do a surgery to essentially flip the arteries around. The success rate is about 95-98 percent on these surgeries. It will take about 5 hours to do the surgery. One of the surgeons from the cardiac team here at UofM just got done telling me he thinks everything will work out great. Our strong little guy is currently in great shape, his oxygen levels are up his blood is 100% saturated and he's got a great blood pressure etc. So although this has been the absolute craziest, scariest, emotional day of my life and I think I can safely say Jessica's, I think, pray and hope its all going to work out. So if you can please say some prayers for our little man, he can definitely use them and yes he still has no name yet! :)

Jess will be fine, she had surgery so you can imagine that that, ontop of all this news was rough, but she held it together 1 Million times better than I. She is a tropper and deserves all the credit in the world. She got to see our little man but missed out on all the craziness of the Survival Flight team. I took many pics and videos of these guys working their magic. I must say it was surreal doing so, I felt weird taking photos of my son getting all this work done to him, but we had to document it. The whole team was joking that he just used up all of his teenage misbehaving points, I said that's right and for the cost of this high tech helicopter ride he isn't getting a car until he's 30, I'll definitely be pulling all these photos and videos out when the time is right and saying see what you did to us, you better behave. It was a nice bit of humor at a crazy time.

Of course I forgot to bring my upload cord but I will hopefully be able to post pics tomorrow.
Jess is at providence and probably will be for a few days, I'm at U of M right now and we'll be here a good part of the time, I'm going home tomorrow to get some sleep, but will be back out here I'm sure tomorrow.

One more thing before I end this crazy long post. I can't say enough about the staff at St.Johns Providence, Uof M Survival Flight and the nurses and doctors here at U of M. They are incredible! Through all this craziness not only did they go above and beyond the call of their duties medically, they kept us informed, filled us in, answered all our questions, rubbed our backs, etc. I'm truly grateful for each and everyone of them and will never forget all they did to help our little guy.

Wednesday, April 15, 2009

Round 3-The C-section

Jess is getting taken in for a c-section, its 5:30. I'm just waiting for the call to go down to the OR. Wish us luck!!

Scott in 329, Jess in OR

And Continues....

Still pretty much the same round here. Jess is starting to have a few more contractions and the baby is occasionally not digging them to much. But they're still plugging along and baby and mom are doing great.

It pains me to say I just beat a pregnant Jessica in Gin Rummy, she would gloat if the tables were turned so I have to get my gloats in to even if she is in labor. :) She did put up a good fight though.

Our new nurse is the one that did our birthing class a couple yrs back, so its kinda like we have a celebrity nurse, so its pretty cool. Everyone in class was like are YOU gonna be our nurse when we come in to give birth? She kept saying probably not as there are so many nurses here. Our former classmates would be soooo jealous! :)

Food Update-Lunch:
Jessica: More Ice Chips
Scott TACO BELL-Whoohoo!
Baby: Yucky Pitosin

TV Update:
Tiger Game

Magazine Update:
Nada

Scott and Jess, bored in 329 (Jessica's words, not mine) :)