Thursday, April 23, 2009

Colby's Getting Better

This pic was from the 23rd, sans breathing tube, look how less puffy he looks then the pic below, yes that's the same baby! He has to be so much more peaceful now. In this pic he really looks like Cooper. First time we could ever see that.

A little puffy here, expected and normal after surgery.

Coop checking out his new buddy!

Cooper and Colby hanging out at last.


Hey all! Sorry for the delay in posts again, it was tough to find a free few minutes today. Colby is doing really well, his strength, will and toughness are unmeasurable in my book. Yesterday they removed his breathing tube, took him off blood pressure meds, removed his main chest tube and took off his dressing. He is currently on only a few meds, and receiving hi-flow oxygen. They did have to put a small chest tube in his side to help drain more fluids. He was really puffy yesterday and by today he looked like a whole new baby. After surgery he got up to about 9 pounds, currently he sits at 7.4 pounds. That's alot of fluid he lost! If you ask me Colby's got a weight loss plan that would put Jenny Craig to shame. Somebody call up Oprah, Dr. Phil and Tyra! :)

They started him back on actual feeds today. This kid isn't messing around. They are running the milk through the tube in his nose that goes down into his stomach. We are really hoping that they begin to get him on bottle feeds really soon. He is sucking on a passifier really well so the nurse feels like he's about ready to start on bottles. Nursing him will not be an option for a while as he builds back all his strength. I'm hoping that Colby can get on a bottle soon for his sake and ours! Jess and I will have to learn how to tube feed Colby if he can't bottle and obviously I'll do anything for my son but I don't remember reading this chapter in What to Expect When You're Expecting. We would have to take the tube and put it through his nose down to his tummy. I prefer to leave the quasi-medical stuff to the docs and nurses, I am not looking forward to that at all. I went to Art School people, not Medical School, I just drove by there on my way to class.
Anyways if it comes to that they'll give us alot of instruction on it so it shouldn't be too bad, I hope.

Colby is getting closer to getting out of the ICU could be anyday now. Once he is out of the ICU he goes into the general care floor. Its a great day but it also has a touch of being bitter-sweet. The only concern you have as the parent is your child goes from 24 hour, one-on-one care to 24 hour, one-on-four care. The nurse in general has four patients vs. one patient per nurse in ICU. So obviously you're thrilled that your child is progressing enough to get out its just a scary thing to think that someone isn't sitting there watching his every move. It will be fine but just nerve-racking.

One of the things that I will remember most about this journey is talking to the other families. There are 15 beds in PCTU and I've met numerous people who are in some unbelieveable situations. The ups and downs that people go through in the PCTU are joyous and brutal. Your child getting extubated gets you congrats all over, a setback gets a sincere show of concern and support. But there is a bond here between the families, I feel it. We can talk with each other and know very well what each other is going through. There is a family here from Kansas City and I've spoken to the dad a number of times and we both have the same concerns and issues, from the fear of tube feeding to setbacks, to how we felt when we found out about our childs condition. You can tell alot about a person by how they handle themselves in stressful situations, well in that case these families are inspirational. They're tough, caring and sincere, eager to talk, share their stories and remember your name, along with all the other stuff they are dealing with.

Jess is still doing great, she is feeling better and better each day. Getting more and more excited for Colby to be on his way to coming home.

Scott

5 comments:

Lisa Hinskey said...

oH WHAT WONDERFUL NEWS! HE IS A HEROIC LITTLE MAN, SO ARE HIS MAMA AND DADDY! I AND JESSICA'S 2ND GRADE CLASS HAVE A SPECIAL GIFT FOR THE "LITTLE CHEESE" AND FOR BIG BROTHER COOP, LET US KNOW WHEN YOUR ALL HOME AND RECOUPING AS THE KIDS WORKED REAL HARD ON THIS SPECIAL GIFT AND I WILL GET IT TO YOU...THEY ALL SEND THEIR LOVE TO YOUR FAMILY, THEY ALL MISS JESSICA A LOT! YOU ALL REMAIN IN OUR PRAYERS AND GOOD THOUGHTS, GOD BLESS YOU ALL... LISA HINSKEY

kraussr said...

This is awesome news Scott. It's so great to see that light at the end of the tunnel burning so brightly!!

biabaj said...

He is so sweet, it's so good to see him looking like he should now. You guys seem so positive and Colby (and Cooper) are really lucky to have such great parents. Still thinking of you everyday. Love, Maria Bajorek (and Mady too, since she also likes seeing pics of "that baby")

Scott said...

Thannks so much Rob!! Yeah we can finally see the light, its so great!!

Scott said...

Thanks so much for all your support through this Maria and Mady, we can't thank you enough. I'll try to get up more pics for Mady! :)