Colby Drew

Well its back to blogging and I wish it was for some happier times. We're back at Mott Children's Hospital, second time this week. Thursday Colby slept almost all day, waking up only to feed a bit and go back to sleep. He didn't seem himself. Jess called U of M they said he could be just tired, maybe he picked up a virus, etc. They told us to watch for seizures, etc. Jess asked what to watch for in that case and hung up the phone. No less than 5 minutes later Colby had his first seizure. Jess was changing his diaper and he started to shake a bit. We called 911 and Livonia Fire Rescue came out. He seized for about a minute and stopped just before the ambulance arrived. He was doing fine at that point. We had him taken to UofM, to be with the docs that know him best. On his way to the hospital he started to have seizures again. When I arrived at the ER, he was seizing and they were trying to get IVs in him. It took 6-7 tries all over before they had to do some special IVs in his leg. He continued to have a seizure for about 2hrs total. It wasn't major shaking, more like a twitch. I have to say I wasn't sure what was going to happen and was preparing myself for the worst. Jess never left Colby's side giving him words of encouragement all the way thru. He does draw alot of attention let me tell you. All these people were gathering around in the ER. That to me is not a good thing persay, which was having me worry even more. But just as they were about to intubate him to help stop the seizures, he stopped seizing. Thank God! At that point they rushed him off for a CT scan of his head. He was breathing on his own at this point too which is a great sign. Colby was admitted to the PICU which is attached to the PCTU (this is where we were for the heart surgery) so we are very familiar with our surroundings. They are trying to figure out what caused him to have the seizure. They were thinking meningitis and were going to do a spinal tap but then decided against that. They noticed some swelling in his head thru the fontanel. They double checked the CT scan that they originally thought was fine and noticed some possible damage to lower back part of the brain. I say possible because we know very little right now. We are awaiting the nuerosurgeons to come in tomorrow morning and talk to us. Currently they are monitoring his brain through an EEG. This watches his brain waves through 26 electrodes placed on his head. We'll know alot more tomorrow.

Please keep Colby in your prayers, he really, really needs them right now. He is such a STRONG dude. All that he has gone thru in this past week is just amazing and we continue to remain positive. I'll update as much as I can to let you know what's going on.