They say Home is where the Heart is, we like to say Home is where the Colbster is! Yes that's right, Colby and Jess came home today, so did Cooper and just like that the fam is back together again. Colby is doing really well. The biggest struggle is watching him, any movements he makes you wonder, is that a seizure? Its a scary thing but something we'll just have to get used to. One of the many bumps on the road we will be traveling. We also picked up his medicine today. A big old bottle of Phenobarbital and a little bottle of Keppra. Its really frustrating to have to measure out these medicines and then give them to Colby. When you measure it you freak out, making sure you're giving the correct amount? Now its the Pheno that's 5ml right? And the Keppra is .65ml right, double check, triple check, quaddroople check. The phenobar is really bad tasting, so we have to get it flavored, Colby made this awful face when we gave it to him this evening.
So were kinda in the same boat as we've been the past few days no new real news, just playing the waiting game. We have numerous up coming appointments which will further open the curtains on what is coming for Colby in the future. MRI, Pediatrician, Neurologist, Phys Med and Rehabilitation, etc., etc.
That's about it for tonight, I'm about to fall asleep at the keyboard, night, night!
Blog to ya later!
Scott
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