Movin' Forward

Hi All,

Colby is doing well, he is regaining his strength and starting to rollover again. He's playing with his toys and just getting back to his happy little self. Colby seems to have regressed back to like a 4 month old. He seems do be doing stuff that he did at 4 months, woobly body, just starting to rollover, doesn't want to eat cereal, stuff like that. But he is starting to get some of that stuff back. Sleeping has also been a bit of an issue. He used to sleep like a dream. I mean 10pm to 7am, like clockwork, not a peep. This started right after we came home from the hospital from heart surgery and got him off the feeding tube. Now he's up all the time. Sunday night he was up and down all night. Anyways, he had a decent Monday night, so that was great. Unfortunately, Colby started having some minor seizures again. We went 3 days without any then Sunday, bam, they started up again. So we called our Neurologist who upped Colby's Keppra dosage from .65ml to 1ml. He had 5 minor twitches on Sunday and 3 yesterday and 3 today. The neurologist said it would take a couple days for the new dose to work its way through Colby's system. So if he has more tomorrow we'll call again and they may have to up it more.

That being said tomorrow will be Jessica's first day back to work. Having to leave the kids is tough, I know Jess is bummed, but I like to think it'll all be okay. Mini Cooper and the Big Cheese will be heading off to their new day care digs. We are very excited for them. It's a great place with what looks to be an excellent staff with great experience. They each will have curriculum geared towards them and their needs and Cooper will be doing all kinds of art projects and fun activities while getting to interact with a number of kids his age. Its very exciting. Its also a little sad that we have to leave them again, especially with everything that has gone down. Unfortunately we don't really have any other options. We both have to work and this is the reality of the situation. We put together a seizure action plan for Colby describing what to look for and what to do in the case that a seizure occurs. If Colby has a seizure and it's minor then they will record it in our journal sheet we made for the teacher. We also included when to call 911 with a number of bullet points and the same thing for when to call us. The teacher was very confident and has had a kid as recent as two yrs ago who had seizure issues. We hope that nothing happens while Colby is in her care but if so I'm confident of the plan we have in place.

I'm sure there are people out there who would say how can you take your kids back to day care after this. It's easy really, we have to and we have to believe that this was a one time incident. We have to believe in the fact that they will get great care at their new digs. We have to believe that getting back to our normal lives will soon be coming around the corner. And beginning that process is getting the kids back to day care. If we had any major doubts about the kids safety or well being we obviously wouldn't do this, but we're both okay with this. We cannot let our lives be defined by this incident and let it scare us enough into altering how we would normally live. Don't mistake what I just wrote to mean we don't care, Oh we care. We probably haven't cared about many things more than we do about this. We've made changes, fixed things and a small part of each of us is changed forever from this incident. We will never ignore this incident or pretend it never happened. This incident is a part of Colby and I hope as he grows he views it as one small part of who he is. But we won't let it completely define who we are, or who he is. Obviously we will be upside down for a while, scared, confused, angry, concerned, up, down etc. ultimately we need to grow from this whole incident, learn from it and make the best of it, whatever that may be. I know that all sounds like cheesy lines from some ABC After School Special, but it all rings true.

Blog to ya later!

Scott