Colby peacefully sleeping today after getting a full little belly.
Its about 3:45. Its been another roller coaster of a day. We were up every couple hours last night to feed Colby via a bottle which is a good thing. He's been eating like crazy all day. Taking 5 ounces one time, 7 ounces another, just chowing down. He even started nursing. The one bummer is Colby had a few more seizures this morning, nothing too bad but still a seizure. He had a couple, one of the seizures just involved his left arm twitching, but thru the seizure he was very active, talking and moving his other arms and legs on his own. It was the most active he'd been thru the morning. That was kinda weird. But these seizures seemed to occur because they think his phenobarbital was wearing off. So they gave him a new dose and he's been fine since. They also removed his EEG monitor. Every seizure he has had has been visible and clinical so they can see them without the machine, no internal seizures. Its great to have that off him because the whole helmet bandage and sensors really irritated Colby, poor guy. So we spoke to the Neuro team again and there is really no new news. Just playing the waiting game. They ruled out a metabolic disorder and are waiting to decide if they'll even do genetic testing. They continue to lean toward this whole thing being a result of Colby's hypoxic event. So alot rests on seeing how Colby does over these next hours, days and weeks. That will determine course of events and how we handle numerous different things. Wish we had more info but we just don't. The docs are telling us everything they know, we are all in the same boat. But Colby is unhooked from the EEG and IVs currently so he is sleeping in Jessica's arms in a chair in our room. He looks so peaceful right now. He also is doing alot more of his own cry and babble, its been great to see.
Jess, Laura and I went into campus this afternoon to have some lunch just so we could get out of here for a bit. It was nice.
That's it from here, watched Michigan lose it in the end last night and watching the Lions lose it right now. Oh well.
Blog to ya later!
Scott
3 comments:
Hi Scott & Jess - You guys are amazing! Colby is so lucky to have such great partents! Thanks for keeping us updated and just know I am a phone call away if you need anything! Jill
Colby is so precious. Thank you for posting the happy pics, it's great to see him smiling :) Thinking of your family and praying.
Jenn.
Hi Scott and Jessica,
I had seen Jessica's post on FB, which made me think to click on your blog. I am so sorry to hear of everything you are going through. Your little guy seems to be quite the fighter. We are keeping all of you in our thoughts and prayers. If there is anything we can do to help let us know.
Kim and Roy
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